Abstract
Exploring accounts of the search for sexual intimacy for 14 men with cerebral palsy revealed a range of issues and impediments and a complex intersubjective process in their search for a lover. Yet, despite an adverse sociocultural context of disability and desirability, most of the men had experienced long-term sexual relationships. The cultivation of several aspects of self and society was noted as facilitating the possibility of their establishing sexual intimacy with others.
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REFERENCES
Buytendijk, FJ: The phenomenological approach to the problem of feelings and emotions. In Feelings And Emotions: The Moosehead Symposium In Cooperation With The University Of Chicago, M. L. Reymert (ed.). New York, McGraw Hill Book Company, 1950, pp. 127–1416.
Edgerton, R. B: The Cloak Of Competence: Stigma In The Lives Of The Mentally Retarded (revised). Berkeley, University of California Press, 1993.
Becker, G: Growing Old In Silence: Deaf People In Old Age. Berkeley, University of California Press, 1980.
Becker, G., Arnold, R: Stigma as a social and cultural construct. In The Dilemma Of Difference: A Multidisciplinary View Of Stigma, S. C. Ainlay, G. Becker & L.M. Coleman (eds.). New York, Plenum Press, 1986, pp. 39–58.
Ablon, J: Stigmatized health conditions. Social Science and Medicine, 15B: 5–9, 1981.
Ablon, J: Little People In America: The Social Dimensions Of Dwarfism. New York, Praeger, 1984.
Predaswat, P: Khi Thut, 'The Disease Of Social Loathing': An Anthropology Of The Stigma Of Leprosy In Rural Northeast Thailand. Unpublished doctoral dissertation, University of California, San Francisco and Berkeley, 1992.
Herskovits, E. J. & Mitteness, L. S: Transgressions and sickness in old age. Journal of Aging Studies 8: 327–340, 1994.
Csordas, T. J: Embodiment as a paradigm for anthropology. Ethos 18: 5–47, 1990.
Csordas, T. J: Somatic modes of attention. Cultural Anthropology 8: 135–56, 1993.
Csordas, T. J: Introduction: The body as representation and being-in-the-world. In Embodiment And Experience: The Existential Ground Of Culture And Self, T. J. Csordas (ed.). Cambridge, Cambridge University Press, 1994, pp. 1–27.
Frank, G: On embodiment: A case study of congenital limb deficiency in American culture. Culture, Medicine, and Psychiatry 10: 189–219, 1986.
Fell, J. P: The phenomenological approach to emotion. In Emotion. D. K. Candland, J. P. Fell, E. Keen, A. I. Leshner, R. M. Tarpy, and R. Plutchik, (contributors). Monterey, Brooks/Cole Publishing Company, 1977, pp. 252–285.
Jackson, M: Paths Toward A Clearing: Radical Empiricism And Ethnographic Inquiry. Bloomington, Indiana University Press, 1989.
Jackson, M: Introduction: Phenomenology, radical empiricism, and anthropological critique. In Things As They Are: New Directions In Phenomenological Anthropology, M. Jackson (ed.). Bloomington, Indiana University Press, 1996, pp. 1–50.
Kleinman, A. M, Kleinman, J: Suffering And Its Professional Transformation: Toward An Ethnography Of Interpersonal Experience. Culture, Medicine and Psychiatry 15: 275–301, 1991.
Merleau-Ponty, M: Phenomenology Of Perception. C. Smith, (trans.) London, Routledge and Kegan Paul Ltd., 1962.
Ostrow, J: Social Sensitivity: A Study Of Habit And Experience. New York, State University of New York Press, 1990.
Shrag, C. O: Experience And Being: Prolegomena To A Future Ontology. Evanston, Illinois, Northwestern University, 1969.
Shuttleworth, R. P: An Anthropological Perspective On Sexuality And Physical Disability. Paper presented at the Annual Meeting of the American Anthropological Association, San Francisco, November 1996.
Shuttleworth, R. P: Sexuality And Physical Disability In Sociocultural Context. Paper presented at the 2nd Annual Disability Studies Colloquium, University of California, Berkeley, April 1997.
Shuttleworth, R. P: Experience and meaning in the pursuit of sexual relationships for men with cerebral palsy. In Proceedings of the 1998 Society for Disability Studies Meeting, Lewiston, MI, Society for Disability Studies, in-press.
Hughes, B., Paterson, K: The social model of disability and the disappearing body: towards a sociology of impairment. Disability & Society 12: 325–340, 1997.
Hughes, B., Paterson K: Disability studies and phenomenology: the carnal politics of everyday life. Disability and Society 14: 597–610, 1999.
Luborsky, M. R: The identification and analysis of themes and patterns. In Qualitative Methods in Aging Research, J. F. Gubrium and A. Sankar (eds.). Thousand Oaks, Sage, 1994.
Kaufman, S: The Ageless Self: Sources of Meaning in Later Life. Madison, University of Wisconsin Press, 1986.
Bourdieu, P: Outline To A Theory Of Practice. Cambridge, Cambridge University Press, 1977.
Becker, G: Metaphors in disrupted lives: Infertility and cultural constructions of continuity. Medical Anthropology Quarterly 8: 383–410, 1994.
Low, S: Embodied metaphors: Nerves as lived experience. In Embodiment And Experience: The Existential Ground Of Culture And Self, T. J. Csordas (ed.). Cambridge, Cambridge University Press, 1994, pp. 139–162.
Kirmayer, L. J: The body's insistence on meaning: Metaphor as presentation and representation in illness experience. Medical Anthropology Quarterly 6: 323–346, 1992.
Denzin, N. K: Interpretive Interactionism. Newbury Park, Sage Publications, Inc., 1989.
Kasnitz, D: Life event histories and the US Independent Living Movement. In Disability and The Life-course, M. Priestley (ed.). Cambridge, Cambridge University Press, in-press.
Shuttleworth, R: Symbolic contexts, embodied sensitivities and the lived experience of sexually relevant, interpersonal encounters for a man with severe cerebral palsy. In The Semiotics of Dis/ability: Interrogating the Categories of Difference, B. Swadener and L. Rogers (eds.). New York, SUNY Press, in-press.
Shakespeare, Tom Gillespie-Sells, Davies, D: The Sexual Politics Of Disability: Untold Desires. New York, Cassell, 1996.
Hahn, H: Masculinity and disability. Disability Studies Quarterly 9: 1–3, 1989.
Gerschick, T. J., & Miller, A. S: Gender identities at the crossroads of masculinity and physical disability. In Toward A New Psychology Of Gender, M. M. Gergen and S. N. Davis (eds.). New York, Routledge, 1996, pp. 455–475.
Shakespeare, T: The sexual politics of disabled masculinity. Sexuality and Disability 17: 53–64,1999.
Tepper, Mitchell: Letting go of restrictive notions of manhood: Male sexuality, disability and chronic illness. Sexuality and Disability 17: 37–52, 1999.
Shuttleworth, R: Defusing the adverse context of disability and desirability as a practice of the self for men with cerebral palsy. In Disability and Postmodernity, M. Corker, and T. Shakespeare (eds.). London, Cassell, forthcoming.
Foucault, M: The History of Sexuality, Volume I: An Introduction. R Hurley (trans.). New York, Pantheon, 1978.
Weeks, J: Sexuality and Its Discontents: Meanings, Myths & Modern Sexualities. London, Routledge & Kegan Paul, 1985.
Halperin, D: One Hundred Years of Homosexuality: And Other Essays on Greek Love. New York, Routledge, 1990.
Herdt, G., Stoller, R. J: Intimate Communications: Erotics And The Study Of Culture. New York, Columbia University Press, 1990.
Freidl, E: Sex: The invisible. American Anthropologist 96: 833–844, 1994.
Guldin, A: Claiming Sexuality: Mobility-Impaired People and Sexualities in American Culture. Unpublished MA paper in anthropology, University of Iowa, 1999.
Waxman, B., Finger, A: The politics of sex and disability. Disability Studies Quarterly 9: 1–5, 1989.
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Shuttleworth, R.P. The Search for Sexual Intimacy for Men with Cerebral Palsy. Sexuality and Disability 18, 263–282 (2000). https://doi.org/10.1023/A:1005646327321
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DOI: https://doi.org/10.1023/A:1005646327321