Skip to main content
Log in

Reducing the unmet needs of patients with colorectal cancer: a feasibility study of The Pathfinder Volunteer Program

  • Original Article
  • Published:
Supportive Care in Cancer Aims and scope Submit manuscript

Abstract

Goals of the work

Many cancer patients experience unmet needs and elevated levels of anxiety and depression. This paper describes a volunteer-delivered intervention to reduce the psychosocial needs of cancer patients and presents findings from a feasibility study of this intervention.

Materials and methods

The telephone-based intervention, called the Pathfinder Program, involves the assignment of volunteers to patients to assist them in addressing their needs as identified in questionnaires. Fifty-two patients with colorectal cancer were involved in the feasibility study, with 18 in the intervention. Sixty-two percent of the sample was male and the mean age was 64 years. Patients’ needs were assessed using The Supportive Care Needs Survey, a colorectal cancer symptom checklist, and the Hospital Anxiety and Depression Scale. All patients completed baseline questionnaires (Time 1) and 47 completed Time 2 questionnaires 3 months later.

Main results

The most common needs were fear of the cancer spreading and returning, concerns about the worries of others, gas or wind, changes in weight, and bowel problems such as diarrhea, constipation, and pain. A statistically significant Time 1 to Time 2 decrease in supportive care needs and depression was found for the intervention group.

Conclusions

The Pathfinder Program has been found to be feasible, acceptable for patients, and has the potential to reduce needs and depression. A larger, randomized controlled trial is needed to determine the impact of this program on colorectal symptoms and anxiety.

This is a preview of subscription content, log in via an institution to check access.

Access this article

Price excludes VAT (USA)
Tax calculation will be finalised during checkout.

Instant access to the full article PDF.

Institutional subscriptions

Fig. 1
Fig. 2

Similar content being viewed by others

References

  1. Aass N, Fossa SD, Dahl AA, Moe TJ (1997) Prevalence of anxiety and depression in cancer patients seen at the Norwegian Radium Hospital. Eur J Cancer 33:1597–1604

    Article  PubMed  CAS  Google Scholar 

  2. Alter CL, Fleishman SB, Kornblith AB, Holland JC, Biano D, Levenson R, Vinciguerra V, Rai KR (1996) Supportive telephone intervention for patients receiving chemotherapy: a pilot study. Psychosomatics 37:425–431

    PubMed  CAS  Google Scholar 

  3. Australian Institute of Health and Welfare (2004) Cancer in Australia 2001. Cancer series number 28. Australian Institute of Health and Welfare, Canberra

    Google Scholar 

  4. Barsevick A, Johnson J (1990) Preference for information and involvement, information seeking and emotional responses of women undergoing colonoscopy. Res Nurs Health 3:1–7

    Google Scholar 

  5. Cull A, Stewart M, Altman DG (1995) Assessment of and intervention for psychosocial problems in routine oncology practice. Br J Cancer 72:229–235

    PubMed  CAS  Google Scholar 

  6. Curry C, Cossich T, Matthews JP, Beresford J, McLachlan SA (2002) Uptake of psychosocial referrals in an outpatient cancer setting: improving service ccessibility via the referral process. Support Care Cancer 10:549–555

    Article  PubMed  CAS  Google Scholar 

  7. Detmar SB, Muller MJ, Schornagel JH, Wever LD, Aaronson NK (2002) Health-related quality-of-life assessments and patient–physician communication: a randomized controlled trial. JAMA 288:3027–3034

    Article  PubMed  Google Scholar 

  8. Donnelly J, Kornblith A, Fleishman S, Zuckerman E, Raptis G, Hudis C, Hamilton N, Payne D, Massie M, Norton L, Holland J (2000) A pilot study of interpersonal psychotherapy by telephone with cancer patients and their partners. Psychooncology 9:44–56

    Article  PubMed  CAS  Google Scholar 

  9. Ford S, Lewis S, Fallowfield L (1995) Psychological morbidity in newly referred patients with cancer. J Psychosom Res 39:193–202

    Article  PubMed  CAS  Google Scholar 

  10. Ginsburg ML, Quirt C, Ginsburg AD, MacKillop WJ (1995) Psychiatric illness and psychosocial concerns of patients with newly diagnosed lung cancer. CMAJ 152:701–708

    PubMed  CAS  Google Scholar 

  11. Gotay CC, Bottomley A (1998) Providing psycho-social support by telephone: what is its potential in cancer patients? Eur J Cancer Care (Engl) 7:225–231

    Article  CAS  Google Scholar 

  12. McLachlan S-A, Allenby A, Matthews J, Wirth A, Kissane D, Bishop M, Beresford J, Zalcberg J (2001) Randomized trial of coordinated psychosocial interventions based on patient self-assessments versus standard care to improve the psychosocial functioning of patients with cancer. J Clin Oncol 19:4117–4125

    PubMed  CAS  Google Scholar 

  13. Sanson-Fisher R, Girgis A, Boyes A, Bonevski B, Burton L, Cook P (2000) The unmet supportive care needs of patients with cancer: Supportive Care Review Group. Cancer 88:226–237

    Article  PubMed  CAS  Google Scholar 

  14. Sellick SM, Crooks DL (1999) Depression and cancer: an appraisal of the literature for prevalence, detection, and practice guideline development for psychological interventions. Psychooncology 8:315–333

    Article  PubMed  CAS  Google Scholar 

  15. Siegel K, Mesagno FP, Karus DG, Christ G (1992) Reducing the prevalence of unmet needs for concrete services of patients with cancer: evaluation of a computerized telephone outreach system. Cancer 69:1873–1883

    Article  PubMed  CAS  Google Scholar 

  16. Zigmond AS, Snaith RP (1983) The hospital anxiety and depression scale. Acta Psychiatr Scand 67:361–370

    PubMed  CAS  Google Scholar 

Download references

Acknowledgements

This program was funded by a project grant from the National Health and Medical Research Council of Australia (Project #300759). We thank Ms. Anna Ugalde for her contributions to the literature review and data analysis.

Author information

Authors and Affiliations

Authors

Corresponding author

Correspondence to Victoria M. White.

Rights and permissions

Reprints and permissions

About this article

Cite this article

Macvean, M.L., White, V.M., Pratt, S. et al. Reducing the unmet needs of patients with colorectal cancer: a feasibility study of The Pathfinder Volunteer Program. Support Care Cancer 15, 293–299 (2007). https://doi.org/10.1007/s00520-006-0128-4

Download citation

  • Received:

  • Accepted:

  • Published:

  • Issue Date:

  • DOI: https://doi.org/10.1007/s00520-006-0128-4

Keywords

Navigation